It Feels Like Home

A Boston girl goes Hollywood then chucks it away for a life in OZ… these are my adventures and general musings.

T Update (another) September 22, 2010

Filed under: Life — Holly @ 9:08 pm
Tags: , , , , ,

First, I want to say thank you to everyone who has written and expressed concern for Little Miss T. We feel so fortunate having family and friends who care so much. It really means a lot to us.

We went for the ultrasound and it was a challenge to get it done, to say the least. Poor T was rather upset and who can really blame her. During the scan, all she saw was a strange man with some cold, goopy gel standing over her while he waved some wand thing all around her head. T of course wanted her mama to hold her during the scan, but it was best to have her lay flat. So, Daddy-O held her body while I held her arms and we sang, made googly faces, whatever we could do to get her to lay still. We ended up having to take several breaks to resettle T because she wasn’t going to stop crying until Mama picked her up.

Eventually, the tech was able to get the images he needed and Daddy-O and I left the office with a bad feeling about how things went.

Later that day, the pediatrician’s office called with the report and gave us the news that T does have extra fluid around the brain. It’s benign but there is an enlarged space and he wants us to see a pediatric neurologist at Children’s Hospital. I don’t really know what it all means… obviously, benign is a good thing but having extra fluid around the brain isn’t. Why is there extra fluid? Why isn’t it draining? How much extra is there? How big will her head grow? Does she need a medical procedure? These are all questions which are unanswered.

So, we’re waiting to see the specialist and we’ll go from there. In the meantime, T’s head continues to grow and we’re starting to notice that it’s a bit large. It doesn’t look overwhelmingly large but there’s no denying she does have a big head- she needs some hair! But she’s happy, in fact, the past few days, she’s been so unbelievably happy. She’s just a little darling and amazes us every day. She’s so close to crawling, she’s chatting more, she’s just so happy.

Well, if you read all that, thank you. I guess the short of it all is that there is extra fluid and an enlarged space between the brain and skull, but it’s benign, and we have a bunch of unanswered questions. Considering everything we went through with T’s birth, Daddy-O and I are pretty calm about the whole thing. I think if T had been a full term baby and this was the first major medical issue she had, we’d be flipping out right now. Instead, we’re collected and trying not to worry too much. Hopefully all will turn out well in the end.

Again, thank you to everyone and we’ll keep you updated. I promise I’ll respond to your emails soon.


4 Responses to “T Update (another)”

  1. emily Says:

    Hang in there, Holly! It’s great you’re so proactive and even get the doctor’s input. She’s happy and healthy, so hopefully they can give you some help.

  2. andrea Says:

    I will be thinking of you guys and T!

  3. CraftyRachel Says:

    Sounds like you are handling this amazingly well. I’m thinking of you and little T!

  4. Libby Says:

    Thinking of you all and hoping that you get some good news with the Specialist.

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