It Feels Like Home

A Boston girl goes Hollywood then chucks it away for a life in OZ… these are my adventures and general musings.

Friends Asking Friends November 24, 2008

Dear Family and Friends,

I’m writing today in hopes of raising awareness and support for a cause very close to my family. As many of you know, my father has Lewy Body Dementia (LBD). LBD is a progressive brain disease and the second leading cause of degenerative dementia in the elderly. It is debilitating and incurable.

The diagnosis of Lewy Body Dementia creates fear and loneliness. The fear comes from dealing with a disease that very few people, even health professionals, know about. The loneliness comes later – when difficult decisions need to be made and it’s not clear where to find help.

LBD is commonly misdiagnosed as Alzheimer’s or Parkinson’s. It is possible you know someone with LBD who wasn’t diagnosed correctly or not at all. And, this can potentially cause irreparable harm if the wrong medications are taken.

For the five years since its founding, the Lewy Body Dementia Association (LBDA) has provided comprehensive information, education and support for the more than 1.5 million women and men affected by this staggering disease.

LBDA is a trusted resource for families, for caregivers and for the medical community. On average, more than 10,000 people visit the LBDA web site each month looking for information and connection to those with similar needs and concerns. Through their web site, helpline, newsletters, symposia, Scientific Advisory Council, local support groups, and discussions with medical professionals, the LBDA is building awareness that help is available for those struggling with this relatively unknown, yet common, disease.

My purpose in writing is to let you know that LBDA needs our help. Please join me in supporting the Lewy Body Dementia Association, which provides much needed services to families dealing with Lewy body dementia (LBD). So, I am asking you to join me during this season of thanksgiving in supporting this extraordinary organization.

Providing support is easy. You may contribute online by clicking HERE. I hope you choose to make a donation to this young and growing organization. But at the very least, visit their WEBSITE to learn about Lewy Body Dementia and the caring, thoughtful resources available to families impacted by this disease.

With much appreciation and thanks for your support,


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